“If you define the problem correctly, you almost have the solution.”
― Steve Jobs
Definitions matter. In almost any context, problems left undefined inevitably remain problems left unsolved.
For this reason, healthcare professionals worldwide rely upon the International Classification of Diseases, Tenth Revision (ICD-10), a standardized system used to categorize and code diseases, symptoms, and health conditions. In the United States, ICD-10 codes serve as the foundation for medical records, insurance billing, epidemiological research, and public health policy. Without specific ICD-10 codes, severe conditions may remain invisible in the healthcare data ecosystem—making it harder to track, study, or provide adequate care.
This is precisely the challenge facing thousands of Americans suffering from persistent severe adverse events after receiving a Covid vaccine—a condition recently defined as Post-Covid Vaccine Syndrome (PCVS). As one of those individuals, I know all too well how debilitating and life-altering this condition can be. Our symptoms include exercise intolerance, excessive fatigue, brain fog, insomnia, and dizziness. They develop shortly after vaccination, within a day or two, can become more severe in the days that follow, and persist over time.
At present, there are no dedicated ICD-10 codes for PCVS. This absence has significant consequences for patients, clinicians, researchers, and policymakers alike.
Visibility in the Healthcare System
One of the primary functions of ICD-10 codes is to make a condition visible within the healthcare system. Without specific codes, PCVS is at best recorded under vague categories like “unspecified adverse effect of vaccine” or “other specified postvaccination complication.” Leery of contradicting the safe and effective narrative, many providers simply utilize codes for general symptoms such as “fatigue” or “paresthesia.” As a result, PCVS is effectively lost in a sea of unrelated data.
Dedicated codes would allow providers to document PCVS in a standardized way, ensuring it is recognized in patient records, insurance claims, and national health databases. This visibility is crucial for legitimizing PCVS in the eyes of both a conflicted medical community and a polarized public.
Hellbound and Down 